ADOPTION EVENTS

  1. Special Needs in Children

    1. Blood Conditions

      1. Blood Disorder
      2. Hemophilia
      3. Hepatitis B Positive
      4. Hepatitis C
      5. HIV Positive
      6. Lead Exposure
      7. Lymphedema
      8. Sickle Cell Anemia
      9. Thalassemia
    2. Chromosome Disorders

      1. Cystic Fibrosis
      2. Down Syndrome
      3. Genetic Syndrome
      4. PKU
      5. Teratoma
      6. Turner Syndrome
    3. Congenital Heart Defects

      1. Atrial Septal Defect (ASD)
      2. Heart Defect
      3. Tetralogy of Fallot
    4. Craniofacial Conditions

      1. Apert Syndrome
      2. Cleft lip or palate
      3. Hemifacial Microsomia
    5. Developmental Needs

      1. Apraxia of Speech and Muteness
      2. Autism Spectrum Disorders (ASD's)
      3. Cognitive Delays
      4. Failure to Thrive
      5. Fetal Alcohol Syndrome
      6. Growth Delay
      7. Motor Delays
      8. Older Child (above the age of 3 years)
      9. Premature Birth
      10. Psychomotor Development Retardation (PDR)
      11. Speech Delay
      12. Toddler age (18 months & 3 years)
    6. Digestive System Conditions

      1. Hernia
      2. Megacolon
    7. Hearing

      1. Deaf
      2. Hearing Impairment
      3. Microtia and Atresia
    8. Neurological Conditions

      1. Cerebral Palsy
      2. Dyskinesia
      3. Epilepsy
      4. Hydrocephalus
      5. Microcephaly
      6. Seizure Disorder/ Epilepsy
    9. Orthopedic Conditions

      1. Amniotic Band Syndrome / Missing Limbs
      2. Arthrogryposis
      3. Brachial Plexus Injury
      4. Club foot
      5. Digit Difference
      6. Dwarfism
      7. Flexion Deformity
      8. Funnel Chest / Pigeon Breast
      9. Limb Differences
      10. Osteogenesis Imperfecta
      11. Radial Club
      12. Rickets
      13. Scoliosis
      14. Spina Bifida
      15. Torticollis
      16. Wheelchair Dependent
      17. Wheelchair Dependent
    10. Skin Conditions

      1. Albinism
      2. Burns
      3. Congenital Blue Nevus
      4. Congenital Nevi
      5. Eczema
      6. Epidermolysis Bullosa (EB)
      7. Ichthyosis
      8. Port Wine Stains
    11. Urogenital Conditions

      1. Ambiguous Genitalia
      2. Anal Atresia / Imperforate Anus
      3. Hypospadias
      4. Incontinence
      5. Kidney Issues
    12. Vision

      1. Blind
      2. Cataracts
      3. Lazy Eye / Amyblyopia
      4. Missing Eye
      5. Nystagmus
      6. Ptosis
      7. Strabismus
      8. Visual Impairment

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23 Children with Thalassemia

Thalassemia

Blood Conditions


Facts About Thalassemia

Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an abnormal form of hemoglobin. Hemoglobin is the protein in red blood cells that carries oxygen. The disorder results in large numbers of red blood cells being destroyed, which leads to anemia.

Click here to view all children with thalassemia

Hemoglobin is made of two proteins: Alpha globin and beta globin. Thalassemia occurs when there is a defect in a gene that helps control production of one of these proteins.

  • The symptoms of thalassemia depend on which type you have.

Thalassemia minor

Thalassemia minor usually does not cause any symptoms. If it does, it causes only minor anemia.

Beta thalassemia

Beta thalassemia comes in two serious types: thalassemia major (also called Cooley’s anemia) and thalassemia intermedia.

The symptoms of thalassemia major (Cooley’s anemia) generally appear before a child’s second birthday. The severe anemia related to this condition can be life-threatening. Other symptoms include:

  • fussiness
  • paleness
  • frequent infections
  • poor appetite
  • failure to thrive
  • jaundice (yellowing of the skin and whites of the eyes)
  • enlarged organs

This form of thalassemia is usually so severe that it requires regular blood transfusions.

Thalassemia Treatment

Treatment for thalassemia major often involves regular blood transfusions and folate supplements.

If you receive blood transfusions, you should not take iron supplements. Doing so can cause a high amount of iron to build up in the body, which can be harmful.

Persons who receive a lot of blood transfusions need a treatment called chelation therapy. This is done to remove excess iron from the body.

Thalassemia Prognosis

People who have mild or minor forms of thalassemia can typically lead normal lives.

Other forms of thalassemia may lead to a shortened life span if not properly treated.

Resources for Thalassemia


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