1. Special Needs in Children

    1. Blood Conditions

      1. Blood Disorder
      2. Hemophilia
      3. Hepatitis B Positive
      4. Hepatitis C
      5. HIV Positive
      6. Lead Exposure
      7. Lymphedema
      8. Sickle Cell Anemia
      9. Thalassemia
    2. Chromosome Disorders

      1. Cystic Fibrosis
      2. Down Syndrome
      3. Genetic Syndrome
      4. PKU
      5. Teratoma
      6. Turner Syndrome
    3. Congenital Heart Defects

      1. Atrial Septal Defect (ASD)
      2. Heart Defect
      3. Tetralogy of Fallot
    4. Craniofacial Conditions

      1. Apert Syndrome
      2. Cleft lip or palate
      3. Hemifacial Microsomia
    5. Developmental Needs

      1. Apraxia of Speech and Muteness
      2. Autism Spectrum Disorders (ASD's)
      3. Cognitive Delays
      4. Failure to Thrive
      5. Fetal Alcohol Syndrome
      6. Growth Delay
      7. Motor Delays
      8. Premature Birth
      9. Psychomotor Development Retardation (PDR)
      10. Speech Delay
    6. Digestive System Conditions

      1. Hernia
      2. Megacolon
    7. Hearing

      1. Deaf
      2. Hearing Impairment
      3. Microtia and Atresia
    8. Neurological Conditions

      1. Cerebral Palsy
      2. Dyskinesia
      3. Epilepsy
      4. Hydrocephalus
      5. Microcephaly
      6. Seizure Disorder/ Epilepsy
    9. Orthopedic Conditions

      1. Amniotic Band Syndrome / Missing Limbs
      2. Arthrogryposis
      3. Brachial Plexus Injury
      4. Club foot
      5. Digit Difference
      6. Dwarfism
      7. Flexion Deformity
      8. Funnel Chest / Pigeon Breast
      9. Limb Differences
      10. Osteogenesis Imperfecta
      11. Radial Club
      12. Rickets
      13. Scoliosis
      14. Spina Bifida
      15. Torticollis
      16. Wheelchair Dependent
      17. Wheelchair Dependent
    10. Other Considerations

      1. 9 Years Plus
      2. AGEING OUT
      3. Attachment Issues
      4. Second Placement
      5. Trauma
    11. Skin Conditions

      1. Albinism
      2. Burns
      3. Congenital Blue Nevus
      4. Congenital Nevi
      5. Eczema
      6. Epidermolysis Bullosa (EB)
      7. Hemangioma
      8. Ichthyosis
      9. Port Wine Stains
    12. Urogenital Conditions

      1. Ambiguous Genitalia
      2. Anal Atresia / Imperforate Anus
      3. Hypospadias
      4. Incontinence
      5. Kidney Issues
    13. Vision

      1. Blind
      2. Cataracts
      3. Lazy Eye / Amyblyopia
      4. Missing Eye
      5. Nystagmus
      6. Ptosis
      7. Strabismus
      8. Visual Impairment


1597 Adoption Stories


10 Children with Tetralogy of Fallot

Tetralogy of Fallot

Congenital Heart Defects

Facts About Tetralogy of Fallot

Tetralogy of Fallot affects the blood flow in the heart and is made up of four different heart defects:

  • VSD
  • Pulmonary stenosis: A narrowing of the pulmonary valve and main pulmonary artery. 
  • The aortic valve, which opens to the aorta, is enlarged and seems to open from both ventricles. In this defect, the aortic valve sits directly on top of the ventricular septal defect.
  • The muscular wall of the lower right chamber of the heart (right ventricle) is thicker than normal. 

These defects cause oxygen-poor blood to be pumped through the body. Children with TOF experience the same symptoms as children with most heart defects: cyanosis (bluing of the skin), fatigue, trouble eating or gaining weight, and clubbed fingers. 

View waiting children with Atrial Septal Defect (ASD)_1

Congenital heart defects are generally caused by an error in heart development in utero. The exact cause is unknown, although could be attributed to genetic or environmental factors. Rubella or drug and alcohol use during pregnancy increase the risks that a baby will be born with CHD. 

Tetralogy of Fallot Challenges

Children with TOF are at greater risk of endocarditis (infection in the heart), arrhythmia, dizziness, fainting, seizures and delayed growth and development. 

Tetralogy of Fallot Treatment

Children with TOF will need to have open heart surgery. Ideally, a child would have a intracardiac repair within the first year of life. The surgeon will patch the VSD and repair the narrow pulmonary valve and artery. If a child is not ready for an intracardiac repair (premature or underdeveloped artery), surgeons will do a temporary repair called a bypass or shunt between the aorta and pulmonary artery. This helps increase blood flow to the lungs so the baby can grow stronger for intracardiac repair. Many children adopted internationally will either have received no surgery at all or had a shunt procedure.

Tetralogy of Fallot Prognosis

Children who have had an intracardiac repair, generally do very well. However, they will still need to be monitored for complications. Possible complications include a leaky pulmonary valve or restricted blood flow. Children with these issues may require an additional surgery or a valve replacement. Prognosis depends significantly on the severity of the defects and how long the child went without corrective surgery. 

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