1. Special Needs in Children

    1. Blood Conditions

      1. Blood Disorder
      2. Hemophilia
      3. Hepatitis B Positive
      4. Hepatitis C
      5. HIV Positive
      6. Lead Exposure
      7. Lymphedema
      8. Sickle Cell Anemia
      9. Thalassemia
    2. Chromosome Disorders

      1. Cystic Fibrosis
      2. Down Syndrome
      3. Genetic Syndrome
      4. PKU
      5. Teratoma
      6. Turner Syndrome
    3. Congenital Heart Defects

      1. Atrial Septal Defect (ASD)
      2. Heart Defect
      3. Tetralogy of Fallot
    4. Craniofacial Conditions

      1. Apert Syndrome
      2. Cleft lip or palate
      3. Hemifacial Microsomia
    5. Developmental Needs

      1. Apraxia of Speech and Muteness
      2. Autism Spectrum Disorders (ASD's)
      3. Cognitive Delays
      4. Failure to Thrive
      5. Fetal Alcohol Syndrome
      6. Growth Delay
      7. Motor Delays
      8. Premature Birth
      9. Psychomotor Development Retardation (PDR)
      10. Speech Delay
    6. Digestive System Conditions

      1. Hernia
      2. Megacolon
    7. Hearing

      1. Deaf
      2. Hearing Impairment
      3. Microtia and Atresia
    8. Neurological Conditions

      1. Cerebral Palsy
      2. Dyskinesia
      3. Epilepsy
      4. Hydrocephalus
      5. Microcephaly
      6. Seizure Disorder/ Epilepsy
    9. Orthopedic Conditions

      1. Amniotic Band Syndrome / Missing Limbs
      2. Arthrogryposis
      3. Brachial Plexus Injury
      4. Club foot
      5. Digit Difference
      6. Dwarfism
      7. Flexion Deformity
      8. Funnel Chest / Pigeon Breast
      9. Limb Differences
      10. Osteogenesis Imperfecta
      11. Radial Club
      12. Rickets
      13. Scoliosis
      14. Spina Bifida
      15. Torticollis
      16. Wheelchair Dependent
      17. Wheelchair Dependent
    10. Other Considerations

      1. 9 Years Plus
      2. AGEING OUT
      3. Attachment Issues
      4. Second Placement
      5. Trauma
    11. Skin Conditions

      1. Albinism
      2. Burns
      3. Congenital Blue Nevus
      4. Congenital Nevi
      5. Eczema
      6. Epidermolysis Bullosa (EB)
      7. Hemangioma
      8. Ichthyosis
      9. Port Wine Stains
    12. Urogenital Conditions

      1. Ambiguous Genitalia
      2. Anal Atresia / Imperforate Anus
      3. Hypospadias
      4. Incontinence
      5. Kidney Issues
    13. Vision

      1. Blind
      2. Cataracts
      3. Lazy Eye / Amyblyopia
      4. Missing Eye
      5. Nystagmus
      6. Ptosis
      7. Strabismus
      8. Visual Impairment


1595 Adoption Stories


4 Children with Osteogenesis Imperfecta

Osteogenesis Imperfecta

Orthopedic Conditions

Facts About Osteogenesis Imperfecta

Osteogensis Imperfecta is a genetic bone disease characterized by bones which are weaker and that break easily. There are eight types of OI, and which type the child has dictates the severity of the symptoms. Children may also may have a blue tint to the whites of their eyes and hearing loss due to weak bones in the inner ear. Children with OI generally have poor dental structure and loose joints. More severe forms of OI may include bowed legs and arms, kyphosis (hunched back) and/or scoliosis.

There are many families that have adopted a child with Osteogenesis Imperfecta, club foot, or other orthopedic differences.  Please use our website to read family adoption storiesview children waiting to be adopted, and learn more about this and other medical conditions experienced by children living in institutions and orphanages. 

Osteogenesis Imperfecta Challenges

  • Fractures may not be noticed readily. If the child appears cranky, irritable, or unable to sleep, a doctor should check for the presence of a fracture. Doctors should treat all fractures. For children with osteogenesis imperfecta, an injury does not have to occur for a bone to fracture. Normal activities like getting out of bed and climbing stairs can fracture bones.
  • This condition does not affect a child's intellect and patients have normal life expectancies.

Osteogenesis Imperfecta Treatment

  • There is no cure for osteogenesis imperfecta. Medications are available to help strengthen bones somewhat. Infection in the bones is a concern for children with osteogenesis imperfecta, and doctors prescribe antibiotics to treat or prevent infections.
  • Crutches, splints, and other ambulatory aids can help a child with osteogenesis imperfecta to walk better. Implanting metal rods can improve bone strength, and fusing the spine may prevent damage and strengthen the child?s frame. A diet high in calcium and vitamin D is important. Normal activity is encouraged as weight bearing helps to strengthen bones, but physical sports and activities that are likely to result in fractures need to be avoided.

Osteogenesis Imperfecta Prognosis

The prognosis for this condition varies greatly depending on the severity of symptoms.  For children with mild symptoms, life expectancy is not impacted.  For children with more severe symptoms, their life expectancy may be shorter.  Most people with OI however, lead very successful lives.

Articles Related to Osteogenesis Imperfecta

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