ADOPTION EVENTS

  1. Special Needs in Children

    1. Blood Conditions

      1. Blood Disorder
      2. Hemophilia
      3. Hepatitis B Positive
      4. Hepatitis C
      5. HIV Positive
      6. Lead Exposure
      7. Lymphedema
      8. Sickle Cell Anemia
      9. Thalassemia
    2. Chromosome Disorders

      1. Cystic Fibrosis
      2. Down Syndrome
      3. Genetic Syndrome
      4. PKU
      5. Teratoma
      6. Turner Syndrome
    3. Congenital Heart Defects

      1. Atrial Septal Defect (ASD)
      2. Heart Defect
      3. Tetralogy of Fallot
    4. Craniofacial Conditions

      1. Apert Syndrome
      2. Cleft lip or palate
      3. Hemifacial Microsomia
    5. Developmental Needs

      1. Apraxia of Speech and Muteness
      2. Autism Spectrum Disorders (ASD's)
      3. Cognitive Delays
      4. Failure to Thrive
      5. Fetal Alcohol Syndrome
      6. Growth Delay
      7. Motor Delays
      8. Premature Birth
      9. Psychomotor Development Retardation (PDR)
      10. Speech Delay
    6. Digestive System Conditions

      1. Hernia
      2. Megacolon
    7. Hearing

      1. Deaf
      2. Hearing Impairment
      3. Microtia and Atresia
    8. Neurological Conditions

      1. Cerebral Palsy
      2. Dyskinesia
      3. Epilepsy
      4. Hydrocephalus
      5. Microcephaly
      6. Seizure Disorder/ Epilepsy
    9. Orthopedic Conditions

      1. Amniotic Band Syndrome / Missing Limbs
      2. Arthrogryposis
      3. Brachial Plexus Injury
      4. Club foot
      5. Digit Difference
      6. Dwarfism
      7. Flexion Deformity
      8. Funnel Chest / Pigeon Breast
      9. Limb Differences
      10. Osteogenesis Imperfecta
      11. Radial Club
      12. Rickets
      13. Scoliosis
      14. Spina Bifida
      15. Torticollis
      16. Wheelchair Dependent
      17. Wheelchair Dependent
    10. Skin Conditions

      1. Albinism
      2. Burns
      3. Congenital Blue Nevus
      4. Congenital Nevi
      5. Eczema
      6. Epidermolysis Bullosa (EB)
      7. Ichthyosis
      8. Port Wine Stains
    11. Urogenital Conditions

      1. Ambiguous Genitalia
      2. Anal Atresia / Imperforate Anus
      3. Hypospadias
      4. Incontinence
      5. Kidney Issues
    12. Vision

      1. Blind
      2. Cataracts
      3. Lazy Eye / Amyblyopia
      4. Missing Eye
      5. Nystagmus
      6. Ptosis
      7. Strabismus
      8. Visual Impairment

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3 Children with Epidermolysis Bullosa (EB)

Epidermolysis Bullosa (EB)

Skin Conditions


Facts About Epidermolysis Bullosa (EB)

Epidermolysis Bullosa, or EB, is a rare genetic skin disorder that causes the skin to blister or slough off at the slightest amount of friction. People with EB are missing, or have a deficiency in, the protein that holds the layers of skin together. Therefore, the slightest touch - wearing a shirt, rubbing an eye, being picked up incorrectly - causes open wounds all over the body. There is no cure.

Children born with this rare disorder need very special treatment.  

**To read stories written by families who have adopted a child with EB, visit our friends at No Hands But Ours

**Families who are considering adopting a child with EB would benefit greatly by visiting the wonderful support website: Butterflies Beyond Borders

Epidermolysis Bullosa (EB) Treatment

The only treatment for EB is preventative bandaging and wound care. Many children are wrapped in bandages from neck to toe 24/7 and endure extremely painful baths and dressing changes every day or every other day. Many EB orphans do not have access to the specialized bandages and life-saving medical supplies that they are in desperate need of. Oftentimes, orphans with EB will be negelcted and left untouched and unloved due to caregiver fear of causing blisters. This may result in developmental trauma, malnutrition, infection, or even death.

Resources for Epidermolysis Bullosa (EB)


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